Ultragenyx

Thursday · GTX-102 · Angelman Program

Good morning, Sarah

How has this week been with Ethan?

EM

Ethan M.

Sleep Sensor Connected

Age 7 · Your child

Currently enrolled in the GTX-102 study

Quick actions

Tap to log

Log a seizure event

Caregiver observation · takes under a minute

Child sleep

Last night

Withings Sleep Analyzer

8h 14m

Score 84 · +6 vs last week

My sleep

Last night

Wrist wearable

6h 48m

Consistency 88% · trend up

No seizure events reported yet

Tap to log a caregiver observation

Communication

Week 24

Progress

+21%

Baseline → Week 24

Quality of life

Monthly

Family wellbeing

78

+6 this month

This week

3 items

Next visit

In 14 days

Development Assessment

Sep 04 · with the study team

Recent activity

  1. Sleep review completed

    Today

  2. Weekly Development Update completed

    Yesterday

  3. Seizure observation logged

    3 days ago

  4. Bayley-4 assessment completed

    14 days ago

  5. Study visit completed

    21 days ago

A little note

Thank you for helping the study team understand Ethan's progress.

Securely shared with your study team.