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Profile & study
Participant context and how observations flow into your study team's view.
My Action Plan
Family seizure action plan
· Stay with your child and keep them safe from surroundings.
· Time the seizure from the first sign.
· If it lasts more than 5 minutes or repeats, follow the rescue medication steps agreed with your care team.
· Contact your study team afterward and log the event.
This summary is a caregiver reference. Always follow the personalized plan from your study team.
Participant Profile
Ethan M.
Age
7
Diagnosis
Angelman Syndrome
Enrollment
May 8, 2025
Study
GTX-102
Program
Apazunersen
Observation window
Week 8
Currently enrolled in the GTX-102 study.
Connected Sensors
Continuous observation between visits
- Live
Withings Sleep Analyzer
Ethan · under-mattress sensor
- Live
Apple Watch
Caregiver · wrist wearable · Battery 78%
Fitbit
Available caregiver wearable
Garmin
Available caregiver wearable
Health Data Sources
What flows into your study team's view
Child sleep sensor
Withings Sleep Analyzer · Ethan
Caregiver wearable
Apple Watch · Caregiver
Assessments
Completed during scheduled study visits
Baseline
Jun 12
65
Most recent
Aug 21
72
Next
Oct 16
—
Communication
72
+7Motor
68
+4Formal assessments are completed during scheduled study visits.
Evidence Data Flow
From caregiver to study team
Caregiver & sensor data
Continuous + caregiver-reported
GTX-102 Study Team
Longitudinal observation platform
Study insights
Family understanding
Account & Study
Privacy & consent
Study documents
Caregiver account
GTX-102 (apazunersen) · Angelman Longitudinal Observation Study · Demo