Ultragenyx

Insights

Communication progress

Communication progress

Baseline → Week 24

+21%
AttemptsGesturesVocalizationsInitiationEngagement
BaselineW12W24

Caregiver sleep

Caregiver burden is a study endpoint

6h 48m

Consistency 88% · +4 this week

Assessment timeline

Formal assessments are completed during scheduled study visits.

Latest development assessment
+4
72

Communication domain

Previous: 68

Completed

July 2025

Next assessment

In 14 days

This week
~ 2 min

Share this week's progress

Tell us about any changes you've noticed in communication, interaction, and daily activities this week.

Takes about 2 minutes
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Quality of life

Monthly check-in

Last 3 months

All up
  • Family wellbeing
    78+6
  • Daily routine stability
    82+4
  • Social participation
    64+8
  • Caregiver confidence
    74+5
  • Family participation
    70+3
  • Caregiver sleep
    78+4

Next caregiver check-in opens in 12 days.

Communication insights

Communication observations have been submitted consistently.

Interaction initiation observations increased during recent follow-up.

Caregiver sleep consistency has trended upward over the last month.

How assessments work
  • · Formal assessments are completed during scheduled study visits by trained professionals.
  • · Weekly Development Updates help capture observations between visits.

This app is a companion to your study team, not a replacement for their assessments.

Formal assessments are completed during scheduled study visits.